Updates #14-9

Tuesday, March 10, 2009

#14 Update March 10th
Sean is very restless; he has a yeast infection on the back of his right leg especially and a reaction to his new medication so he is itching like crazy. The nurse gave me some Benadryl allergy cream to put on his rash and that seemed to help. She also stopped his new medication and gave him some Benadryl. He stopped squirming quite so much. Anyone who has every had a yeast infection knows how much it itches, poor guy. He is a lot more comfortable before I left. He had the speech therapist today so we should see him talking a lot more now. One of the medicines they took away that controlled his tremors is noticeably making a difference. He is having tremors again in his hands, not as bad as before though. It is a little unnerving for me to see him step a little back but I will endure and pray. It has been hard these last couple of days, I want my Sean again.
Posted by Paul Andrea at 9:55 PM 0 comments
Saturday, March 7, 2009

#13 Update March 6th
Sean was calmer this evening, but is still trying to remove his oxygen line from his ears; the tube loops around them and then connects under his nose. His "meals" are given for a half hour period through the feeding tube, since he is prone to gagging if it comes any faster.We're looking forward to letting Delaney see him and, more importantly, to his seeing her. He seems to perk up when she talks to him.
Posted by Paul Andrea at 1:45 PM 0 comments
Thursday, March 5, 2009

#12 Update March 5th
Quite a day, Sean is trying to talk more, tried to climb out of his bed 3 times and the doctor from Craig rehabilitation came to evaluate him. He has lost 56 pounds as of March 1st. The doctor from Craig will come back in a week after he has been off of several medications to reassess him. He felt the medications were inhibiting his movements and responses. I told him he had a bald spot in the back of his head when I washed his hair and his eyebrows raised.
Posted by Paul Andrea at 9:25 PM 0 comments
Wednesday, March 4, 2009

#11 Update March 4th
Sean is more alert and can track you when you enter his room. Today when cousins Bev and Geno visited him he had just finished sitting in a chair for 2 hours. He isn't talking a lot, but he is checking out all of his monitor lines and other lines attached to his body. Bev asked him if he was going to stop playing with one of the tubes today and he said "no". He now wears a mitten on his left hand. When I got there this afternoon he was sleeping. He slept off and on, he tried to say something to me but I couldn't understand him; then he fell asleep again. I am currently reading one of his books to him even when he is sleeping. The book is pretty interesting. I bet he can tell me all about the plot and characters. I definitely would never have read this book if it weren't his for sure. Someday soon he is going to talk a blue streak I just know it. Thanks again for your prayers and support, words simply aren't enough.Andrea
Posted by Paul Andrea at 1:11 PM 0 comments
Sunday, March 1, 2009

#10 Update March 1st
Sean is more alert today, and seemed to respond to us. Andrea brought some lotion to put on his feet, and gave him the squeeze dispenser to handle. He took it from her hand and pulled it closer to his face, then lost interest in it. We should get more information about his pneumonia and MRSA status tomorrow, and with luck, he'll be back doing his therapies.Thanks again for all of your prayers and good thoughts; we'll never be able to thank you all enough for them, both for him and for us.Paul, Andrea, Paulette, Delaney & Sean
Posted by Paul Andrea at 9:09 PM 0 comments

#1-9 Updates Feb 28th
Hello,Paulette created a blog page for updates so that you can keep up to date at your leisure. http://pkknott.blogspot.com/Sean was moved to Triumph Hospital late on Thursday evening. He still has pneumonia; he started coughing a lot with some blood involved so he is semi-sedated so he won't cough and also has MRSA (a super bug) so we need to take precautions around him. BUT he is doing a lot better and stable.The move last weekend went amazingly well thanks to a lot of people. There were about 20 of us between cousins, aunts, uncle and friends that packed & loaded into the truck Sean's apartment on Saturday. Then on Sunday 12 agents from the office came to unload and it took a mere hour and a half. Thank you everyone that helped. Words are simply not enough for what it meant. When this is over and done we will have a HUGE party to celebrate Sean's victory and survival.Friday, Nina, Delaney and I finished finalizing Sean's apartment. Delaney and I spent some time with him then headed home.When Paul and I went up today he woke up several times, looked around for a few minutes then he'd fall back asleep. He is getting some needed rest.